Céline Dion, 56, has insisted that her new documentary, “I Am: Celine Dion,” include footage of her suffering a seizure.
The “My Heart Will Go On” singer, who has a rare autoimmune neurological disorder called stiff person syndrome, is shown undergoing a physical therapy session in 2022.
During the session, Dion is seen convulsing and writhing in pain on a massage table while medical workers tend to her. Despite the distressing scene, Dion mouthed when asked if she wanted the cameras turned off, “I’m OK.”
The documentary’s director, Irene Taylor, told Yahoo that Dion did not want any changes to the footage after watching it. Taylor described the episode as highly upsetting, explaining how they could not move from the room and used a microphone to check if Dion was breathing.
She noted that Dion felt validated by seeing herself as vulnerable and believed it would help others understand her condition.
On-screen, Dion expresses her embarrassment and loss of control during these episodes but remains determined to continue her career. “I still see myself dancing and singing. I always find Plan B and Plan C, you know. That’s me. If I can’t run, I’ll walk. If I can’t walk, I’ll crawl. But I won’t stop. I won’t stop.”
Dion’s condition has led her to withdraw from the public eye, though she made brief appearances at the 2024 Grammys and her documentary premiere. Taylor revealed that they had not discussed beforehand what to do if Dion experienced a health issue on camera, as such incidents were infrequent.
Taylor recounted how Dion emphasized not to stop filming if an episode occurred, stating, “Don’t ask me permission to film; just keep rolling, and we can talk about it later.” Dion watched the documentary with her three sons, using it to explain the extent of her condition and the impact of stiff person syndrome on her body.
Despite her health challenges, Dion remains resilient and committed to her art, inspiring many with her unwavering determination.
